The Road Back

Bubsy had another good mood day.   He got through the night without the help of any drugs and was generally in a mellow mood all day.  Nice for Bubs and nice for mamas.

We're getting close in terms of the removal of his chest tubes.  He had much less drainage today than he did yesterday.  Hopefully one or both will come out tomorrow.  

He started on a blood thinner (Warfarin).  This was expected as there is a chance of clotting around his Fontan shunt.   He will likely be on the drug for at least a year and maybe longer.   Its a bit concerning because he will bleed more than a typical child when he's hurt...and of course a three year old is going to have some skinned knees.

We started physical therapy today.   We requested the consult as Bubs is having trouble sitting up on his own, much less butt scooting.   I didn't expect the surgery to cause this much regression, but then I've never tried to sit up with a broken sternum before either.   In addition, he has lost almost two pounds in the last two weeks which has to deplete his strength.  All that said, with a little help, Bubs sat up for two 15 minute sessions, a very good start on the road back to wellness.

Our evening ended with a few songs and a snuggle with Mama V...