Staying the Course, of course, of course

Bobby had a good afternoon yesterday, and since he had a dedicated nurse, the Mamas went home last night for some respite in the form of reality television (Mob Wives), a home meal, and a chance to sleep in our own bed! Ah, the simple, trashy pleasures in life...

This morning's rounds brought news of Bobby's increased chest tube drainage, which had been slowly declining, and also concerns about his kidney values. They discontinued the IV motrin, since that can adversely impact the kidneys, and the pain control team should be paying us a visit to discuss alternatives. The left chest tube drainage is becoming a bit cloudy again, in spite of Bubs being on the new formula, but the docs want to wait a bit before deciding to discontinue Bobby's gtube feedings (which, I'm guessing, might mean they would then put him on IV feedings... or TPN, which is not ideal). For now, we continue to wait for the chest tubes to stop draining and see what happens with the chylothorax.

Bobby's had a great day today. He was given the chloral hydrate last night, and got a good night's sleep, as we did. He's back to a much more energetic, smiling and happy Bubs, which is lovely to see. His day nurse is great - she created a makeshift mobile of Bobby's toys out of a cord hung the length of his crib, and Bobby's had great fun batting at the toys with both hands and feet. We also blew bubbles, and he's now entertaining himself with his new Zhu Zhu pet from his buddy, Sami. Oh, almost forgot to mention that last night, Bobby also decided he was sick of the IV in his hand, so he ripped it out. They decided not to replace it, which is a good thing all around, so he now has the use of both hands! Yay! I told the nurse today that Bobby will let us know when he's ready for the chest tubes to come out :)

Below are a couple of videos of my silly boy's shenanigans...