All is relatively quiet on the Bubsy front. He woke up for a while yesterday evening and I had visions of a long, thrashy, night. But he calmed down soon enough and slept through most of the night.
Today they are going to start him on Sildenafil, which helps with his oxygenization. They are removing his foley, weaning him off of the nitric oxide, and being a little more aggressive about upping his Pedialyte feeds. We're going up 5 ml an hour every 4 hours. Provided things go OK, by this time tomorrow he should be on 50 ml of Elecare per hour.
For the most part, Bubs just continues to sleep. I don't think he'll have any real energy until he gets some Elecare into his system. Fortunately, he doesn't seem to be in much discomfort - the pain medications have been kept to a minimum and he is doing fine.
The true test will come tomorrow when they wean him off of his oxygen and we'll see how his saturation levels change. If they are strong, we'll likely go home soon.
It's wonderful that things are moving along relatively smoothly. Believe me, I know that doesn't make it less stressful for you Moms. We're thinking of you all, and remembering how hard a time this was for our family. Certainly going through this 3 times is far too much for any family, and any strong little boy.
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